I try very hard to keep prepared & to teach my son this skill. It affects everything, from cleaning up after yourself, to having everything ready to go to get out the door. As we all know, if you don't put away your breakfast dishes, they will be there waiting for you later. "I'll do it later," is the common thought right. Well, then later comes, you have other chores to do, and other commitments to run off to. Later never comes. Next thing you know its tomorrow morning & there's the stinking dishes from yesterday, still sitting there. This is typical action & consequence in real life. Being prepared to get out the door has its own obstacles. I have found that I have to break it down, every day, to the essentials. If I leave it open to guess, stuff gets missed, like lunch. The natural consequence for that is to go hungry and to play on your friends generosity to share their lunches. When there's a lack of friends because of exclusion practices in play, who's going to share their lunch? Then it snowballs into a hungry morning since there's nothing to snack on. Then a hungry grumpy lunch time with nothing to do or eat while everyone eats their lunches. Other kids can sense he's on the brink of not coping, so they tease his last nerve because thats what kids do (and its kinda fun to push him around a bit, power play stuff). Then the afternoon is where the struggle really shines. Being outside on the playground is usually okay, outside is nice, there's other things to think of and do. Class starts again & the hungries set in. This wouldn't bother a regular kid the same way because they would've mootched of their friends lunches. My auspie kid didn't. So now there is learning to do, behaviours to keep in check. Again with other kids zeroing in on this, they quietly but steadily take turns bugging the last nerve. It doesn't take long for a full on Mad to erupt, this ends the learning, the concentration, and the coping that was on thin ice anyway. Off to the school office, where the Mad is out of the classroom, but needs to be vetted somehow. No adult seems to know how to communicate or address the Mad, or defuse it. Enter Yelling, and what looks like Uncooperative arm & arm with Defiant. Or thats what it looks like to any adult that has no knowledge or comprehension of the backstory. See, autism is invisible now. My son has been punished like this multiple times every school year. Despite multiple communications, extra snacks stashed in the backpack, and repeated occurrences, it keeps happening from time to time. Sometimes it happens if he was busy minding the social interactions in play during lunch between his classmates. Sometimes he's way off task & no one was around to check & cue him to get on with it, eat your lunch. The fallout overflows to the school bus ride home, where other kids, even much younger ones, enjoy poking the last shreds of nerves. Then if he's really lucky, he can't communicate it to the bus driver because he's so overwhelmed & fed up, HE gets punished by the bus driver with a disciplinary warning bus note. Next transition is coming home, bang the front door, with Mad & Unpleasant in full power. The cats know to hide. I know that he needs to calm down but there's no way he's gonna snack at this point. On goes happy cartoons, with my direction, "
on the next commercial, go wash your hands & face so you can snack."
This is just one day, that can happen several times a week. I've seen it happen enough to know the whole sequence. I've done the "sleuthing" the "planning" and the "problem solving." It doesn't do any good to hide him from daily interactions or events. Life isn't fair, or easy. If an auspie kid is never made to go through the everyday challenges, how will they ever learn to figure it out themselves? We've had lots & lots of problem days, similar & different to the one described today. Sometimes all the planning & preparedness just goes out the window. Thats life isn't it.
My misadventures parenting a child with Auspergers Autism. By reading this blog you agree to not plagiarize, slander or distort the content of this blog. I do not claim to be an expert, these are my thoughts & observations as they come to me so I can make sense of them. If my insights help someone else struggling, then I have succeeded at sharing some knowledgeable experience & understanding with the world.
Monday, May 23, 2011
Wednesday, May 18, 2011
Bullying
This is such an unhappy topic everywhere. There are school policies, there are unspoken social rules, there are rules of etiquette. Kids don't follow rules on the playground. Regular kids know how to bend around the rules, to lie, to partially lie, to "cover their butt" and to think on their feet for basic strategies. Bullying is not new, it isn't getting better & it isn't going away. It comes out in lunch treasures being stolen, exclusion, mean pranks, name calling and soon escalates to hitting. Teachers can't monitor it all, kids know this, they run the school-ground. If the school isn't policing the name calling fiercely, the other behaviours wash in, like the tide the ebb & flow through the day. I think that is impossible for an auspie to grasp so much inconsistency. AND autism is mostly an invisible disorder so those kids are punished harder with these every day social interactions. You can teach a kid to lick their lunch in front of the other kids to get them to back off, or to clearly reply, "What will you trade me for it?" Not so easy if things are already missing. So after 2-3 weeks of this going on you report it to the teacher who has a talk with the class about stealing and fairness it gets better for while. Why does it take 2-3 weeks to get on top of? Life, and that delightful child gap memory that filters & processes differently doesn't tell you until he's really mad about it. So the stealing resumes and occasionally a desirable lunch item is laced with soap or hot sauce before it goes to school, with a hope & a prayer that no on will go out of their way to accuse of poisoning their kid. The ones that complain loudest are often the ones enjoying delivering the unfairness. They are hopefully learning a lesson that they should not take what is not theirs, to ask before taking, and that other people have rights too.
Saturday, May 14, 2011
Behaviours
I've been struggling with my son's behaviours for thirteen years. Some are cute, others are downright obnoxious. The problem is they are often the same behaviour. So a behavior that was cute or even funny, like hiding homework behind the class book shelf in grade 1, is now a longstanding problem in different variations. It was silly, even smart at the time, now its a lousy habit. That microsecond that I was human & approved the inappropriate behaviour with a small smile, well, now its entrenched. yay. It doesn't seem to matter which adult micro-approves, thats what sets it in place. I can repeat myself, clearly, concisely, loud or quiet, threaten, bribe, or fine, yet we still struggle with everyday basic sequences. I'm talking getting ready for school, getting ready for bed, getting out the door to get to an appointment... Something is messed up with the transitions. I know that to get through these trials I need to set the expectation that he will reach for independence. The problem is the every day implementation of it.
Factor in that his behaviour & response are emotion driven, its not rational, just full on maddening.
Problem solving is like this, the theories are all well and good. Not so helpful in practice. I have to be lock & key with every move until its mastered before I back off. Then we have a setback, or he forgets, & we start up again. Every day is sort of like the movie "Groundhogs Day" with Bill Murray. The day starts out about the same, repeatedly, and seem familiar but they're not. Its nice in a way that if yesterday was a bad day, it doesn't taint the new day. Its awful to every day be reminding of basic functional patterns like making sure he's got his lunch, backpack, planner, and house-key before bombing out of the house at the last possible second to the school bus. It takes a looooonnnnnnngggggg time, but eventually he masters a sequence. Occasionally he masters it quick. Of course, we have setbacks & the sequence has to be rebuilt because it doesn't fit anymore.
Okay, here's a current functional problem solving in progress. Getting out the door. Thats what is understood to be a "transition." Life is full of transitions, there's no avoiding it. Going out, coming home, the movie ends, getting ready for the day, getting ready for bed, a car crash, losing a job, being late... How do you teach "transitioning" when there is a gap in daily memory? We have lists to help give the responsibility, they're only good if referenced to. Comic books, Leggo, TV, the cat, an itchy back, and more can all derail transitions. So every day I am there to keep the reminders flowing to get out the door with everything needed to succeed the day. Occasionally I am inconsistent. Shift work does that & so does life. Hiding human inconsistencies doesn't help an auspie solve everyday challenges, real life isn't consistent & neither are people. When I back off & am less insistent on the everyday preparations for each day, he goes off into his own orbit. I like his happy place, there's lots of interesting things going on there, I wish I could go there too. But when the clock is running out, and its getting more pressure based, things get worse. Bring on the Mom voice, asking, reminding, nagging, yelling, threatening, bribing... Mostly none of that bag of tricks works. Backing off & allowing natural consequences isn't always an option. If he misses the school bus, well, now I have to drive him or he walks. Driving him is kinda what he's after, more time with me. I'm all about getting him independent in his life skills. I have already said that if I have to drive because he missed the bus I will go in my housecoat, jammies & slippers and walk him to the front door, a public deterrent I hope. He's still not quite on top of the whole strangers & interacting to let him walk alone regularly. That would be better if he had another kid to walk with, but he's excluded a lot. Thats another post later.
Factor in that his behaviour & response are emotion driven, its not rational, just full on maddening.
Problem solving is like this, the theories are all well and good. Not so helpful in practice. I have to be lock & key with every move until its mastered before I back off. Then we have a setback, or he forgets, & we start up again. Every day is sort of like the movie "Groundhogs Day" with Bill Murray. The day starts out about the same, repeatedly, and seem familiar but they're not. Its nice in a way that if yesterday was a bad day, it doesn't taint the new day. Its awful to every day be reminding of basic functional patterns like making sure he's got his lunch, backpack, planner, and house-key before bombing out of the house at the last possible second to the school bus. It takes a looooonnnnnnngggggg time, but eventually he masters a sequence. Occasionally he masters it quick. Of course, we have setbacks & the sequence has to be rebuilt because it doesn't fit anymore.
Okay, here's a current functional problem solving in progress. Getting out the door. Thats what is understood to be a "transition." Life is full of transitions, there's no avoiding it. Going out, coming home, the movie ends, getting ready for the day, getting ready for bed, a car crash, losing a job, being late... How do you teach "transitioning" when there is a gap in daily memory? We have lists to help give the responsibility, they're only good if referenced to. Comic books, Leggo, TV, the cat, an itchy back, and more can all derail transitions. So every day I am there to keep the reminders flowing to get out the door with everything needed to succeed the day. Occasionally I am inconsistent. Shift work does that & so does life. Hiding human inconsistencies doesn't help an auspie solve everyday challenges, real life isn't consistent & neither are people. When I back off & am less insistent on the everyday preparations for each day, he goes off into his own orbit. I like his happy place, there's lots of interesting things going on there, I wish I could go there too. But when the clock is running out, and its getting more pressure based, things get worse. Bring on the Mom voice, asking, reminding, nagging, yelling, threatening, bribing... Mostly none of that bag of tricks works. Backing off & allowing natural consequences isn't always an option. If he misses the school bus, well, now I have to drive him or he walks. Driving him is kinda what he's after, more time with me. I'm all about getting him independent in his life skills. I have already said that if I have to drive because he missed the bus I will go in my housecoat, jammies & slippers and walk him to the front door, a public deterrent I hope. He's still not quite on top of the whole strangers & interacting to let him walk alone regularly. That would be better if he had another kid to walk with, but he's excluded a lot. Thats another post later.
Subscribe to:
Posts (Atom)